Comparison of the Quality of Life of Patients with Hirschsprung Disease Following Yancey-Soave and Transanal Endorectal Pullthrough

Introduction: Transabdominal Yancey-Soave and transanal endorectal pull-trough (TEPT) procedures are the most common surgical approach for Hirschsprung disease (HSCR). One crucial aspect to evaluate after pull-through is the quality of life (QoL) of HSCR patients. It leads to further management and predicts patients' prognosis. This study aimed to provide quantitative dan qualitative data about QoL of HSCR patients. Methods: A mixed-method sequential explanatory design was conducted to determine the QoL of children with HSCR after Yancey-Soave and TEPT surgery at our hospital from 2013 to 2018. Results: There were 15 samples included in this study: Yancey-Soave (n=5) and TEPT (n=10). The median QoL score of patients who underwent TEPT (2.85, IQR=2.75-2.93) was higher than patients who underwent the Yancey-Soave procedure (2.63, IQR=2.61-2.81). The parents informed that the children have a better overall QoL following surgery. Both parents inform that their children sometimes experience soiling. The major complaint of a patient after Yancey-Soave surgery is frequent bloating meanwhile the major complaint of a patient after TEPT is diarrhea. Conclusion: Our study shows that patients who underwent TEPT surgery may develop an enhanced QoL than the Yancey-Soave pull-through. Our study provides a comprehensive quantitative and qualitative analysis of the patient's QoL after definitive surgery from a specific population.